B4-Social Prescribing for Connection and Care: Dementia Inclusive Ballina's Support for Young Onset Dementia Families
Podium 2
2:30 PM - 2:50 PMTue
Podium 2
Carers
Speakers
A/Prof Sabrina Pit
Associate Professor Social Prescribing and Integrated Care
Southern Cross University and PCCS
Introduction Young Onset Dementia (YOD), affecting people under 65, presents distinct challenges. Families often experience delayed diagnosis, stigma, and limited access to appropriate services, particularly in regional areas. Social prescribing and dementia-inclusive community initiatives may help address gaps in support, social inclusion, and wellbeing. Method As part of a larger study on dementia-inclusive community alliances, we evaluated the impact of a Ballina-based support group specifically for people with YOD and their carers. Participants were referred through GPs, allied health professionals, and community-based organisations. Consensus-Based Focus Groups (two groups) were conducted in accessible public spaces. Participants scored the group’s effectiveness across four aims: information sharing, confidence in daily functioning, social inclusion, and wellbeing. Scores were discussed, reasons recorded, and recommendations developed. Data were analysed using reflective summaries and inductive thematic analysis. Results Consensus scores improved across all aims except daily functioning, which remained stable due to progression of dementia. Social inclusion showed the greatest improvement (from 4/10 at entry to 9/10). Qualitative findings highlighted the value of shared lived experience, practical tips, and monthly speakers. Carers reported reduced isolation, greater awareness of legal and service supports (e.g. NDIS, advance care planning), and stronger wellbeing through community belonging. Challenges included geographic barriers, balancing diverse needs (e.g. YOD and Down Syndrome), and sustaining volunteer-led initiatives without funding. Discussion This project demonstrates that regional, community-led, dementia-inclusive groups can provide social prescribing benefits by enhancing connection, belonging, and wellbeing for carers and people with YOD. Referral pathways via GPs and community organisations are central to access. Findings highlight the need for sustainable models, culturally grounded approaches, and inclusion of younger family members. We recommend scaling such initiatives through integration into local health and community planning, ensuring equity and access for families impacted by YOD.