PRRF Family Connection Conference
April 18, 2026  ·  Oakland Center at Oakland University AND VIRTUAL

Each year, the Pediatric Retinal Research Foundation's (PRRF) Family Advisory Committee hosts a conference to bring together individuals living with or impacted by rare retinal diseases. 

Our annual conference brings together families, researchers, and world-renowned clinicians for the only conference dedicated exclusively to pediatric retinal diseases. This hybrid event features a live Q&A session, panel discussion, and a compelling keynote presentation. Guests will also have opportunities to connect with other people living with rare retinal diseases, parents, caregivers and professionals. This year’s focus will be on assistive technology and AI, an exciting and rapidly evolving area of hope for our community. At its heart, the conference brings families together to share experiences, find strength, and build lasting connections.


Planning to bring your children to the in-person event? Don’t worry! We’ll have volunteers available to lead children in fun and educational activities, allowing adults to fully engage in the conference sessions.


If you have any questions, contact Luisa Recchia at luisa@prrf.orgWe hope you can join us!

Agenda
Saturday, April 18
9:00 AM
9:00 AM
9:30 AM - 10:00 AM
9:30 AM - 10:00 AM
Check in outside of Gold Room C in the Oakland Center at Oakland University
10:00 AM - 10:05 AM
10:00 AM - 10:05 AM
Luisa Recchia will welcome everyone in person and online to this year's conference.
10:05 AM - 10:15 AM
10:05 AM - 10:15 AM
Stephanie Saville will share the top priorities and latest updates happening within the Pediatric Retinal Research Foundation.
10:15 AM - 10:35 AM
10:15 AM - 10:35 AM
Dr. Drenser will share an update on the latest research initiatives in the rare retinal disease space.
10:35 AM - 11:45 AM
10:35 AM - 11:45 AM
10:45 AM - 11:30 AM
10:45 AM - 11:30 AM
Ask Dr. Capone, Dr. Drenser and Dr. Trese any questions about pediatric retinal diseases or research initiatives. Submit your questions in the Zoom chat or on the index cards provided on the tables.
11:30 AM - 12:00 PM
11:30 AM - 12:00 PM
12:00 PM - 12:30 PM
12:00 PM - 12:30 PM
Brenden Warner will speak about "Vision Beyond Sight: Navigating Life with Tech & Tenacity"
12:30 PM - 12:40 PM
12:30 PM - 12:40 PM
12:40 PM - 1:30 PM
12:40 PM - 1:30 PM
Join this panel discussion on all things related to assistive technology
1:30 PM - 1:40 PM
1:30 PM - 1:40 PM
1:45 PM - 2:30 PM
1:45 PM - 2:30 PM
In person attendees are welcome to walk to the Pediatric Retinal Research Lab for a guided tour by Dr. Ken Mitton
3:00 PM
3:00 PM
Speakers

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Exhibitors

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Sponsors
LOCATION
Oakland Center at Oakland University AND VIRTUAL, 312 Meadow Brook Road, Rochester, MI 48309
Location: Oakland Center at Oakland University AND VIRTUAL, 312 Meadow Brook Road, Rochester, MI 48309