RNS Community Chat

July 12, 2017

5pm PST / 8pm EST

Do you or a loved one suffer from uncontrolled seizures?  New treatment options may be able to help.

Please join us on a free educational call, to learn more about the RNS System as a treatment for drug-resistant, partial epilepsy.  You will hear from an epilepsy specialist and an RNS System patient.  You may ask questions or just listen. Individuals living with epilepsy loved ones, and caregivers are all welcome to join.

SPEAKERS

A bit about Hannah's story .... 

I started having the seizures in seventh grade. Up until that point, I had been a straight-A student with plans to attend Mississippi State University and become a special-education teacher. But once the seizures started, they caused so much short-term memory loss that I could never pass high school.

My seizures came from both sides of my brain, so I was told that I was not a good candidate for brain surgery. In 2008, I got the vagus nerve stimulation (VNS). I had that for about three years.

In 2015, when I was 23-years old, I had surgery at Bonner Children’s Hospital in Memphis to implant the RNS System. I was the first person in the U.S. to receive the RNS System outside of the clinical trials.

After I had the RNS System implanted, I went from having six or seven seizures a week all the way down to just three seizures in a whole month. The seizures I do have now are less severe than the ones I had before. I used to black out and hit the floor. I can still talk during the seizures now, but I have to drag out my words. Still, most of the time, I could have a seizure in a room full of people and they would never know. I’m also able to bounce back more quickly from the seizures.

My father and grandfather are both barbers. When I couldn’t make it through high school, they encouraged me to try being a barber. I managed to make it through barber school and have worked as a barber for almost five years now.

I’m happy if I can give people hope by telling my story. When I met other patients at Bonner who were coping with epilepsy or other illnesses, I tried to encourage them. I told them, “Don’t give up. Have faith in yourself – because that is what it’s going to take.” 


Every person’s seizures are different and individual results will vary. See important safety information.